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  • hace 13 minutos
Steve Gleason necesita ayuda para hacer algo que la mayoría hace sin pensarlo: cerrar los ojos antes de dormir. El video muestra cómo alguien le coloca cuidadosamente cinta adhesiva para mantener sus párpados cerrados como parte de su rutina nocturna, revelando un momento profundamente personal en la vida de la leyenda de los Saints con ELA.La escena permite conocer de cerca el apoyo que necesita cada día. Su dificultad para cerrar los ojos ya se había documentado, incluso en un reportaje de los Saints sobre los desafíos que enfrentó mientras escribía sus memorias.

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00:01Lots of questions on how Steve sleeps, and since he can't really close his eyes, we taped them shut.
00:05So I'll show you how we do that today.
00:07So first things first, we gotta take his scleral lenses out of his eye.
00:10So we come here.
00:16That's his beeper.
00:17So that's the lens out of his eye.
00:20This one's kind of dirty.
00:26Then right after we take his lenses out, we're going with some gel drops.
00:32Two to three drops in each other.
00:34So the beeper you keep hearing is how Steve, if Steve needs something in the night, he can actually wiggle
00:40his ears.
00:41So you can come show him that here.
00:44So we hook up the sound of this to a baby monitor in the other room.
00:47And if Steve needs something in the middle of the night, when his eyes are shut, he can look over
00:54there, wiggle his ear, and hit the beeper, do it again.
00:58So pretty cool.
01:00Daughter Gray likes to decorate his tape every morning, so.
01:03This is Gray jumping off a rock onto the water.
01:08And then this one is a shark attack.
01:12And which one's yours?
01:13I think this one.
01:15Okay.
01:20I forgot to turn the hot water on, but you do a hot rag.
01:24Then we'll take this one, right?
01:29Tape his eyes shut so he can sleep.
01:34So the scissors are a hot commodity around here.
01:38Flush on his mood.
01:45Kind of pull down.
01:54All right.
01:55So there's one.
02:00So we tried to get his eyelid.
02:02There we go.
02:03It's a good angle.
02:04The top lid.
02:05So we can pull it down.
02:06It's a good angle.
02:11Like that.
02:13That way, since he can't really shut his eyes, this keeps them shut.
02:17And now we have a whole different communication system.
02:20So it's still the letter board, but Steve uses his mouth since he obviously can't use his eyes.
02:24So we get a whole world.
02:24And he just said,
02:25where are you guys playing auf of the earth?
02:26is like, oh, thanks.
02:26And whether or not,
02:27Youiveryller is a huge fan.
02:27That's exactly what we look like,
02:27Episodio is an amazing architect
02:27and then remember if you still have a little boy ranking,
02:27Or do you see more space
02:27I want you to walk away.
02:28I can't open this up.
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